According to the Mayo clinic definition, Rheumatoid Arthritis is an autoimmune disorder which “occurs when your immune system mistakenly attacks your own body’s tissues. In addition to causing joint problems, rheumatoid arthritis can also affect your whole body with fevers and fatigue”.
Let’s think about this for a moment… That means my immune system really attacks my own body’s tissues? Yes, once you are diagnosed with this debilitating disease, you learn that your body will constantly fight YOU for the rest of your life. Imagine that… Your body has no control of your body. Scary stuff.
In my case, pain moves throughout different joints in my body, but it does so symmetrically. So if my left wrist is in agonizing pain, my right wrist is sympathetic and the pain in my right wrist becomes excruciating too. The same is true in my toes, my fingers and most often.. my hips. My hips burn constantly. When my disease flares up in my hips, knees or ankles, I can barely walk let alone make my way up the stairs to my second floor bedroom. When my fingers are affected, it’s impossible for me to wash my hair, brush my teeth or button my own fly. Thank God leggings are back in style!
While it’s true that research and medicine have come a LONG LONG way over the past 5-10 years, they haven’t yet come far enough. I started trying various drug cocktails about five years ago now. From Methotrexate to Prednisone to Humira to Enbrel to Sulfasalazine to Naproxen to Vicodin to Celebrex and still no 100% relief?! Unbelievable. My current flavor of the week is a combination of Humira, Methotrexate and Sulfasalazine. Who knows what’s next? My doctor recently mentioned Orencia which is given through transfusions once a month. Sure, I’ll find the time to spend an entire day at the doctor’s office once a month between working all day and going to school in the evenings…
All of that being said, I’m starting to get the feeling that I’ve painted myself as an absolute pessimist between my last two blog entries. I promise you dear readers, that is not the case. In fact, it’s amazing what happens to people when God throws some obstacles in their way. Nothing is impossible! More on that later.


17 comments
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March 11, 2010 at 2:44 pm
Jessica
Katie you are an interesting writer. I look forward to reading your future blog posts. Even though you are struggling with this potentially crippling disease, one would never guess with your outwardly positive attitude! And even when you are faced with life’s obstacles, you still find time to come up with clever quips like “Thank God leggings are back in style!” and “…varous drug cocktails.” Very Katie of you
March 29, 2010 at 3:07 am
Bird
When I suddenly experienced intense pain and swelling, leading to the discovery that I had developed RA, I felt totally blindsided. I knew nothing about this disease and needed info that I could understand right away.
April 25, 2010 at 9:43 pm
katiestew
I completely agree bird.. part of my mission is to create awareness about RA so nobody has to feel alone the way you and i did when we were first diagnosed. Take care and stay well!
April 15, 2010 at 6:48 pm
Don
Katie; Thank you for you blog. You do a great job at explaining the pain and what it’s like to have RA. We have lots of people come in to our research facility and talk a lot about what you describe.
I am not sure where you are located but if you in the DeLand, Orlando, FL we do clinical trials here. If not, maybe some of your readers could contact us
Treatments for rheumatoid arthritis are one of the research studies we’ve been working on here in DeLand, Florida. Some of our investigational treatments have shown promising results, but there is we need to do additional research studies to test investigational methods that may help us understand the condition.
April 25, 2010 at 9:45 pm
katiestew
Thank you so much for sharing don. I am currently located in the Chicagoland area, but am interested in centers conducting clinical trials like your’s does. Hopefully, some of my readers in Florida can take advantage. We appreciate everything you do!!
November 3, 2010 at 12:07 pm
Sandra
Don, it’s so great to know the research is on-going. I wish I lived closer, I would definitely jump in, but I’m in Houston, keep up the good work and please keep us posted!!
September 7, 2010 at 10:50 am
jean fulton
i think i have it my fingers knees ankles and elbows are very painful it keep awake most night and i have the pain all the time it get very red as well it make it very hard to do things around my house
September 13, 2010 at 10:57 am
katiestew
Hi Jean, thank you for sharing. I definitely feel your pain. My fingers and hips are usually the worst. Lately, my knees have been acting up pretty bad too. Have you found any medication to help you during your flares? I hope that you have been blessed with people in your life to help you around the house. Keep well and take care!
October 13, 2010 at 1:38 pm
Terry
Hello Katie, I just ran across your blog while checking out some other RA blogs I follow. I was diagnosed with RA 7 years ago. It’s not an easy journey that we are on, but we continue on and do the best that we can. I started on Enbrel/MTX, then Orencia, now am on Humira/MTX. You mentioned Orencia infusions. it would take on average 1 1/2 to 2 hours from walking in to walking out when I was doing them. Wouldn’t it be great to find 100% relief?
October 13, 2010 at 9:04 pm
katiestew
Yes. We will continue to dream about 100% RA relief… until it actually happens! And I’m confident that it will happen… someday.
March 7, 2011 at 1:23 am
Tina
I have read all of the above comments,and i hope one day there is a cure for this.
My daughter is three almost four and she has been diagnosed with JRA,it is terrible for her and our family to deal with.The hardest part is im mommy and i cant make ir better or go away.We are having a hard time finding the right fix for her.If anyone could tell me anything they do that seems to help during a flair up…or just on one of the bad days i would greatly appricate it.
September 17, 2011 at 6:54 am
Asoka Benard
I read your concerns and I can here the pain you are in, right in my ears.
Nevertheless, life has to continue.
could you try the forever living products. My doctor told me they helped a certain patient of his.
September 9, 2011 at 9:09 am
Amanda
Katie,
I’ve been told that a change in my diet can alleviate some of the pain – I haven’t seen a change yet…..any suggestions?
September 9, 2011 at 11:29 am
katiestew
What changes have you made to your diet? Have you eliminated red meat and wheat? Try exchanging those things that cause inflammation with other things that can help alleviate it like salmon, veggies, chicken, whole gains, etc. Also add vitamin D. It helps!
October 13, 2011 at 12:58 pm
Amanda Panda Ramharack
I haven’t stopped red meat, but I do opt for fruits, veggies for lunch as opposed to lets say pizza. I noticed my calcium intake too has changed – i don’t drink as much milk so I’ trying to go back to that
April 13, 2012 at 9:59 pm
michelle
I just found out that i could have had an RA flare up. The doc thought that it was tendonitis and gave me a steroid shot and it seemed to help. waiting to see a RA doctor to find out if that is truely what i have. I feel so overwhelmed and confused, and know that the stress right now is not helping at all. Hips and legs ache all of the time shoulders are always stiff.
April 15, 2012 at 8:15 pm
katiestew
I’m so sorry to hear that Michelle! But think I know just how you feel. It’s so scary to learn you might have a chronic disease. Have they tested your RH factor via blood test yet?