Help, I have Rheumatoid Arthritis and I CAN’T SLEEP!!!

Posted: April 21, 2017 in A Day in the Life of Rheumatoid Arthritis
Tags: , , , ,


Does anyone else with Rheumatoid Arthritis (RA) have trouble sleeping? The crazy thing is, it’s not the pain that keeps me up at night. At least I don’t think it is the pain, or perhaps I’m partially immune to the pain after 12 years of living with RA. Could it be side effects from my medication? Stress? Work? Life? One thing is for certain. The more I think about sleep, the less I sleep.

I’ve written about RA’s connection to sleep and fatigue before, but it’s been a while so I recently started to re-research the connection . Turns out 50% of RA patients have complained about insomnia. 50%?? That’s insanity! Not that it matters, but nobody warned me about this side effect! Add it to the list…

I’ve tried reading, watching TV, taking melatonin, general relaxing, meditation, the HeadSpace app, warm baths before bed, drinking warm milk like a baby… Heck, I’ve even tried Lunesta which actually works, but I’m afraid of getting addicted or sleepwalking.

So I’m reaching out to my spoonie friends for help. What sleep remedy works best for you? I’m willing to try just about anything.

  1. Jackie Hildenbrand says:

    Hi, KStew! I do have problems sleeping too – sometimes I just can’t find a comfortable position for all of the aching body parts (ugh!). It can be soooo difficult to stay active, but I do think I sleep better on nights when I’ve worked out that day. And please don’t think I’m nuts, but I started using a lavender essential oil at night. Just a a couple drops in my hands, rub to create some friction and then I take a few deep inhales and breathe it in deeply. I also run my hands over my sheets so the pretty lavender scent is there to. I hope you find something that works for you, chickie!

  2. Bob Stewart says:

    Have you tried one of those wave machines?

    Sent from my iPhone


  3. Cat says:

    I’m 38 and had RA for 21 years. Try taking your meds at a different of day and I swear by fresh air, sunshine and a stroll. It’s not 100% and doesn’t stop brokennights caused by pain and stiffness but it does help with the tossing and turning and getting to sleep.

Hi and thanks for stopping by! I will review and approve your comment shortly. If you have questions or want to get in touch, please feel free to email me at or follow me via twitter at @kstew_arthritis. Stay well!

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s