Posts Tagged ‘fatigue’


Saw more logs

Sleep is so important to those of us with an already weak immune system.

It’s no secret that catching major Z’s can be virtually impossible when you have RA (Rheumatoid Arthritis), especially when your disease is flaring. Whatever the reason for not being able to sleep; pain, stress, anger, all of the above; sleep is so important for your overall health. In fact, insomnia can further damage an already dysfunctional immune system.

In Health Monitor’s March 2012 issue of “My Guide to RA”, they share 5 tips to help us Rheumies saw more logs (a fancy way to say “get more sleep”).

1. Cover the basics. Your bedroom should help you relax. Make sure you have a comfortable mattress, high-quality pillows and no clutter.

2. Develop a relaxation ritual. Plan to relax and wind down at least one hour before you go to sleep. This could include dimming the lights, turning off the TV, listening to soft music, meditating, and/or taking a warm bath with candles and a book.

3. Stretch, stretch, stretch! At home—and even on the road when you travel for work – Some make it a priority to take a hot shower each night. And then follow up with a series of stretches, including yoga.

4. Have sleep and pain medications ready. Check with your doctor to identify the appropriate medicine to take in the evening. After three or four nights of poor sleep, some will turn to a prescribed sleep medication—but only after they have gone through the typical routine of stretching and a hot shower. Tim, a man afflicted by RA said “I used to reach for a sleep aid when I could have stretched,” he notes. “It is so convenient to take the pill.”

5. Exercise regularly. “I try to get good exercise during the course of the day. It just makes my joints feel more lubricated,” says Tim, who likes to walk, bike, swim and work out on the elliptical machine. However, he makes sure to work out earlier in the day, as exercising late will stimulate him and keep him awake.

However it is that you choose to stay in shape through exercise and or relax, just make an effort to do it. Your body will thank you and be more apt to rest at night. God knows you deserve it because fighting disease can definitely take a toll on your system. The full article can be found here.


Pain can be a major drain

According to the Mayo clinic definition, Rheumatoid Arthritis is an autoimmune disorder which “occurs when your immune system mistakenly attacks your own body’s tissues. In addition to causing joint problems, rheumatoid arthritis can also affect your whole body with fevers and fatigue”.
Let’s think about this for a moment… That means my immune system really attacks my own body’s tissues? Yes, once you are diagnosed with this debilitating disease, you learn that your body will constantly fight YOU for the rest of your life. Imagine that… Your body has no control of your body. Scary stuff.
In my case, pain moves throughout different joints in my body, but it does so symmetrically. So if my left wrist is in agonizing pain, my right wrist is sympathetic and the pain in my right wrist becomes excruciating too. The same is true in my toes, my fingers and most often.. my hips. My hips burn constantly. When my disease flares up in my hips, knees or ankles, I can barely walk let alone make my way up the stairs to my second floor bedroom.  When my fingers are affected, it’s impossible for me to wash my hair, brush my teeth or button my own fly. Thank God leggings are back in style!
While it’s true that research and medicine have come a LONG LONG way over the past 5-10 years, they haven’t yet come far enough.  I started trying various drug cocktails about five years ago now. From Methotrexate to Prednisone to Humira to Enbrel to Sulfasalazine to Naproxen to Vicodin to Celebrex and still no 100% relief?! Unbelievable. My current flavor of the week is a combination of Humira, Methotrexate and Sulfasalazine. Who knows what’s next? My doctor recently mentioned Orencia which is given through transfusions once a month. Sure, I’ll find the time to spend an entire day at the doctor’s office once a month between working all day and going to school in the evenings…
All of that being said, I’m starting to get the feeling that I’ve painted myself as an absolute pessimist between my last two blog entries. I promise you dear readers, that is not the case. In fact, it’s amazing what happens to people when God throws some obstacles in their way. Nothing is impossible! More on that later.